In partnership with
Clinical trial sites in Georgia, Florida and North Carolina
Find and access trials at Rare Disease Research with myTomorrows
Rare Disease Research (RDR) is fully dedicated to clinical studies for rare conditions. In partnership with myTomorrows, we make it easier for patients to find trials and for physicians to refer with confidence, all through one trusted platform.
Learn how it works
Who we are
A research site built for the rare disease community
RDR is an independent clinical trial site dedicated exclusively to rare conditions. Our mission is to develop safe and effective therapies for those who need them the most.
With several locations in the United States, our expert, compassionate team conducts trials across multiple rare disease areas, always with the highest ethical standards and a deep commitment to the community we serve
How it works
myTomorrows offers a simple, secure process to connect eligible patients with local studies.
1
View active trials
See which trials are currently recruiting at Rare Disease Research.
2
Pre-screen eligibility
Use our secure pre-screening tool to assess patient eligibility quickly.
3
Refer your patient
Refer your patient directly on the platform or connect with the RDR team to discuss trial details.
Frequently Asked Questions (FAQs)
How does the referral process work?
At RDR, we’ve partnered with myTomorrows to keep the referral process clear and efficient. Start by searching for currently recruiting RDR trials on the myTomorrows platform and checking eligibility with their AI pre-screening search. If a study looks suitable, you can refer your patient directly or contact our team. We’ll confirm eligibility, coordinate next steps, and keep you informed.
How will trial participation impact continuity of care?
We work alongside treating physicians to complement, not replace, the care you provide. You remain your patient’s primary care provider. With patient consent, we share relevant updates so you can stay involved throughout the trial.
Will I receive any trial updates?
With the patient’s consent, we can provide updates on eligibility, enrollment status, and other agreed-upon milestones. Our team values collaborative care and aims to keep you informed at key stages of your patient’s participation.
Who is myTomorrows?
myTomorrows, is our trusted partner helping streamline the clinical trial referral process through a secure and easy-to-use. They support trial search, pre-screening, and referral management, making it easier for patients and physicians to connect with relevant studies. As a global company with a growing footprint in the United States, including an office in New York City, myTomorrows has supported over 16,200 patients and 2,500 physicians at more than 290 sites.
How do you protect patient privacy?
Our partner, myTomorrows, operates a secure platform used for trial search and referral management. The platform is ISO-27001 certified and compliant with GDPR, HIPAA, and SOC 2 standards. Patient information is only processed with explicit consent and is accessible only to qualified team members directly supporting the patient. No data is shared without permission. For details, see the myTomorrows privacy policy or contact dataprotection@mytomorrows.com.
How it works
myTomorrows helps you with trial search and access – with personal support at every stage.
1
Talk to a navigator
Connect with a patient navigator for free, personal guidance on your options.
2
Review & decide
If eligible, review trial details with your navigator’s support and decide whether to proceed.
3
Participate
If you choose to join, your navigator guides you through the steps toward enrollment.
Frequently Asked Questions (FAQs)
What are clinical trials?
Clinical trials are research studies that evaluate new treatments to see if they are safe and work well. These treatments are experimental and not yet approved for regular use. Trials help doctors better understand medical conditions and find new ways to treat them. By joining a trial, you help advance medical research while receiving close monitoring from a dedicated research team.
Why do people take part in clinical trials?
People take part in clinical trials for different reasons. Some may take part because they want to learn more about their disease and potential treatments. Others volunteer to take part because they want to help researchers learn more about (the treatment of) a disease to potentially help others in the future.
What are clinical trial eligibility criteria?
Every trial has a set of rules, called eligibility criteria, that determine who can join. These may include your age, diagnosis, medical history, or current treatments. Eligibility criteria help make sure the results are accurate and aim to protect the safety of participants. A myTomorrows patient navigator will go through these criteria with you and answer any questions you may have around being a potential fit.
Is participation voluntary?
Yes, taking part in this study is voluntary. You may receive detailed trial information, ask questions, and decide freely. Informed consent ensures you understand the trial and can withdraw at any time without any penalty and without affecting your care or rights.
The investigational gene therapy will be delivered through a one-time minimally invasive brain surgery. If you decide to withdraw after you have received the gene therapy, the gene therapy cannot be removed from your body. Gene therapy does not wash out of your body over time and cannot be reversed.
Do clinical trials carry any risk?
Like any medical treatment, clinical trials can have risks, such as side effects from the treatment being studied. For your safety, trials include extra tests and clinic visits so the team can closely monitor your health. Each study is reviewed by an independent ethics committee before it begins. The study team at RDR will explain any known risks before you choose to join a study, and you can stop participating at any time.
What is a patient navigator?
We’ve partnered with myTomorrows to help you explore clinical trial options. At myTomorrows, each patient is assigned a dedicated Patient Navigator, a trained professional with a medical background, closely supervised by a team of doctors. Your Patient Navigator will guide you through every step, from checking your eligibility to answering questions and helping with paperwork. They can explain trial information in clear, simple language, and support is available in multiple languages, so you feel comfortable and understood.
How Can I Get Ready to Join a Clinical Trial?
If you're thinking about joining a clinical trial, it's helpful to be informed and prepared. Your Clinical Research Coordinator will guide you through any steps you need to take before starting, based on the specific study. In most cases, you’ll be asked to share your medical history or records during the initial screening process.
Do patients have to pay for clinical trials?
No, you won’t have to pay for the treatment being studied; it is provided at no cost by the company developing the medicine. Some clinical trials also offer reimbursements or small payments to help cover things like travel to the clinic, meals during visits, or other related expenses.
How do you protect my privacy?
We’ve partnered with myTomorrows, to support patients who want to learn more about RDR trials. If you choose to search for trials through this page, you will contact myTomorrows. Therefore, your information will be handled directly by them, not by RDR. All data is stored securely, follows strict privacy laws like GDPR, and is only accessed by the myTomorrows medical team. Your details are never shared without your clear permission. For more details, you can review the myTomorrows privacy statement or contact their data protection team at dataprotection@mytomorrows.com.