In partnership with
Clinical trial sites in Georgia, Florida & North Carolina
Explore clinical trials for Duchenne and other conditions at Rare Disease Research
Rare Disease Research (RDR) is an independent U.S. clinical research site network. We currently recruit for multiple DMD trials, alongside studies in other rare conditions.
A myTomorrows patient navigator can help you explore whether an RDR trial may fit your situation — at no cost, with no obligation.
Clinical trials currently recruiting
Which trial may be relevant to your situation?
RDR is currently recruiting for five clinical trials in Duchenne Muscular Dystrophy (DMD), alongside studies for other rare conditions including Spinal Muscular Atrophy, Angelman Syndrome, Dravet Syndrome, and more.
Important to know
These trials study investigational treatments for various rare conditions. Eligibility criteria may include factors such as age, confirmed diagnosis, mutation type, and other health factors. The RDR team can help review this with you.
Not sure which clinical trial may be relevant to you?
A patient navigator can help you review your situation and understand what next steps could look like.
How it works
The easiest way to find out whether a currently recruiting RDR trial may be relevant to you or your child is to speak with a myTomorrows patient navigator. They can help you understand the available options, answer your questions, and guide you toward the right next step — whatever the condition.
Step 1. Speak with
a navigator
Book a free 15-30 min call to discuss your situation and learn about the clinical trials currently running at RDR for your condition.
Step 2. Understand
your options
If a trial may fit, your navigator can help you understand the study details and what next steps could look like.
Step 3. Decide whether to move forward
If you decide to continue, your navigator will connect you with the RDR team for onsite screening. Asking for information does not commit you to joining a study.
Your data is processed securely and in line with HIPAA and GDPR.
Book a free call
Who we are
About RDR and myTomorrows
Rare Disease Research (RDR) is an independent U.S. clinical trial site network dedicated exclusively to rare conditions. Our mission is to develop safe and effective therapies for those who need them the most.
With locations across Georgia, Florida, and North Carolina, our expert, compassionate team conducts trials across multiple rare disease areas — including Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, Angelman Syndrome, Dravet Syndrome, Lennox-Gastaut Syndrome, Prader-Willi Syndrome, MELAS Syndrome, and Migraine.
In collaboration with myTomorrows, RDR offers a platform where patients, caregivers, and physicians can learn about currently recruiting studies and connect with our team with confidence.
RDR is a certified clinical trial site operating in accordance with ICH-GCP standards. All studies featured on this page have been reviewed by an independent ethics committee.
Frequently Asked Questions (FAQs)
What happens after I submit my information?
After you submit your information, you can choose a time to speak with a myTomorrows patient navigator. The navigator will ask a few questions about your situation and help you understand whether any clinical trials currently recruiting RDR trials may be worth exploring, across any of the conditions RDR researches. You do not need to have everything ready before the call. Final eligibility is always confirmed by the RDR team.
Who may be able to take part in a clinical trial at this site?
This depends on the clinical trials currently available at RDR and the criteria for each study. Criteria may include age, confirmed diagnosis, medical history, current treatments, test results, and other health factors. A navigator can help you understand whether your situation may match the basic criteria for an available trial. The RDR team will confirm whether participation may be possible.
Is taking part in a clinical trial voluntary?
Yes. Taking part in a clinical trial is always voluntary. Before deciding, you will receive information about the clinical trial, have time to ask questions, and review what taking part would involve. You can decide not to join, or stop taking part later, without penalty or losing access to your usual care.
Do clinical trials carry any risk?
Yes, clinical trials can carry risks, including possible side effects or the treatment not working as hoped. To help protect participants, clinical trials follow strict rules and include safety checks, such as physical assessments, lab tests, or other follow-up visits. Each clinical trial is reviewed by an independent ethics committee before it begins. Before you decide whether to take part, the clinical trial team will explain the possible risks and potential benefits.
How is my privacy protected?
If you search for trials through this page, your information will be handled by myTomorrows, not by RDR. All data is stored securely, follows strict privacy laws including HIPAA and GDPR, and is only accessed by the relevant myTomorrows medical team. Your details are never shared without your clear permission. Review the myTomorrows privacy statement or contact dataprotection@mytomorrows.com for details.
What is a patient navigator?
A patient navigator is a trained myTomorrows team member who helps patients and caregivers understand clinical trial options and next steps. They can explain information in clear language, help check basic eligibility criteria, and support communication with the clinical trial team where appropriate. A patient navigator does not give medical advice and does not replace your doctor. For medical decisions, you should speak with your treating physician or care team.
What are clinical trials?
Clinical trials are research studies that test potential treatments to learn more about their safety and how well they work. These treatments may be investigational, which means they are still being studied and are not yet part of routine medical care. Clinical trials follow strict rules and are reviewed by independent ethics committees to help protect participants. What’s involved can vary by clinical trial, including visits, tests, and how the treatment is given.
Do patients have to pay for clinical trials?
Costs can vary depending on the clinical trial and local rules. In many clinical trials, the investigational treatment and clinical trial-related tests or visits are provided at no cost, but other costs may differ. Reimbursement or modest compensation may be available in some cases to help with certain expenses. The clinical trial team or research site will explain what is covered before you decide whether to take part.
Why do people take part in clinical trials?
People take part in clinical trials for different personal reasons. Some want to explore potential treatment options that are still being studied, while others want to support research that may help patients in the future. Taking part is always voluntary, and patients can decide not to join or stop taking part at any time. It’s important to discuss any clinical trial option with your treating physician or care team.
How can I get ready to join a clinical trial?
If you’re considering a clinical trial, it can help to gather key medical information, such as diagnosis details, current treatments, recent test results, and relevant medical history. You do not need to have everything ready before speaking with a navigator. A navigator can help you understand what information may be useful before speaking with the research team. The clinical trial team at RDR will guide you through any formal screening steps and explain what is needed before taking part.
Clinical trial sites in Georgia, Florida & North Carolina
Refer patients to clinical trials for Duchenne Muscular Dystrophy and other rare conditions at RDR
Rare Disease Research (RDR) is an independent U.S. clinical research site network focused exclusively on rare conditions. We currently recruit for multiple DMD trials, alongside studies in other rare conditions.
Through the myTomorrows platform, you can review active studies, pre-screen patients against key eligibility criteria, and refer directly to the RDR team for formal screening.
Clinical trials currently recruiting
Which study may be relevant to your patient?
RDR is currently recruiting for five clinical trials in Duchenne Muscular Dystrophy (DMD), alongside studies across other rare disease areas including Spinal Muscular Atrophy, Angelman Syndrome, Dravet Syndrome, and more.
Important to know
Eligibility criteria vary across studies and may include factors such as age, confirmed diagnosis, mutation type, and prior treatment history. The RDR team can review specific criteria with you ahead of referral.
Want to discuss a patient case?
Review referral steps, compare study details and pre-screen a patient through the myTomorrows platform.
How it works
myTomorrows provides a secure and efficient way to review the clinical trials currently recruiting at RDR — across all conditions — and refer patients directly to the site team. You can also use the platform to check key eligibility criteria before referral.
Step 1. View active trials
Browse all currently recruiting RDR studies across conditions and identify which patient profiles may be relevant.
Step 2. Review key criteria
Use the myTomorrows platform to assess whether your patient may meet key eligibility criteria for a specific study.
Step 3. Refer your patient
Submit a referral directly to the RDR team. They will follow up with the patient regarding formal screening and next steps.
The pre-screening tool is optional and does not determine final eligibility. The myTomorrows platform is ISO-27001 certified and compliant with GDPR, HIPAA, and SOC 2 standards.
Refer a patientWho we are
About RDR and myTomorrows
Rare Disease Research (RDR) is an independent U.S. clinical trial site network dedicated exclusively to rare conditions. Our mission is to develop safe and effective therapies for those who need them the most.
With locations across Georgia, Florida, and North Carolina, our expert, compassionate team conducts trials across multiple rare disease areas — including Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, Angelman Syndrome, Dravet Syndrome, Lennox-Gastaut Syndrome, Prader-Willi Syndrome, MELAS Syndrome, and Migraine.
In collaboration with myTomorrows, RDR offers a platform where patients, caregivers, and physicians can learn about currently recruiting studies and connect with our team with confidence.
RDR is a certified clinical trial site operating in accordance with ICH-GCP standards. All studies featured on this page have been reviewed by an independent ethics committee.
Frequently Asked Questions (FAQs)
How does the referral process work?
RDR has partnered with myTomorrows to make the referral process clear and efficient across all conditions. You can review currently recruiting RDR studies and key eligibility criteria through the myTomorrows platform. If a study appears relevant, you can refer through the platform or contact the RDR team directly. The RDR team will review the referral, guide next steps, and provide updates where appropriate.
Can I refer a patient if I am unsure they meet the criteria?
Yes. If a patient appears potentially eligible based on the available study information, you can refer them for review. The RDR team will assess whether the patient may proceed to formal screening. Referral does not guarantee eligibility or enrollment.
How will trial participation impact continuity of care?
Clinical trial participation at RDR is designed to complement existing care, not replace it. Your patient can continue seeing you for their regular care while the RDR team manages trial-related screening, procedures, and follow-up. The exact arrangement depends on the specific study.
Will I receive any trial updates?
With the patient's consent, RDR can provide updates on eligibility, enrollment status, and other agreed milestones. Our team values collaborative care and aims to keep referring physicians informed at key stages.
Who is myTomorrows?
myTomorrows is RDR's trusted partner for clinical trial search, pre-screening, and referral management. Through a secure, easy-to-use platform, myTomorrows helps physicians and patients connect with relevant studies. myTomorrows has supported over 16,200 patients and 2,500 physicians at more than 290 clinical trial sites globally, with a U.S. office in New York City.
How do you protect patient privacy?
The myTomorrows platform is ISO-27001 certified and compliant with GDPR, HIPAA, and SOC 2 standards. Patient information is processed only with explicit consent and accessed only by qualified team members directly supporting the patient. No data is shared without permission. Contact dataprotection@mytomorrows.com for details.