Neurodegenerative diseases are conditions that cause brain and nerve cells to slowly break down over time. These diseases can lead to problems with thinking, learning, decision-making, body movements, and overall brain health. Some of the most common neurodegenerative diseases that affect millions of people around the world include:
ALS is a progressive disease that damages nerve cells in the brain and spinal cord. Over time, this leads to muscle weakness and loss of movement. People with ALS slowly lose the ability to walk, talk, eat, and eventually breathe without help. Researchers are running clinical trials to find treatments that can slow the disease and improve quality of life. Globally, ALS affects about 4 in 100,000 people.
Parkinson’s is a disease that gets worse over time. It mainly affects the brain cells that control how you move. People may have stiff muscles, shaking, slow movements and problems with balance. Scientists are studying new treatments, like immunotherapy, gene therapy, and stem cell therapy, to slow down or stop the disease. Parkinson’s affects over 8.5 million people globally and is most common in older adults.
Multiple system atrophy is a rare disease that slowly damages brain cells. MSA affects movement. People may have slow movements, shaking, and trouble with balance and coordination. It also causes problems with things the body does on its own, like keeping blood pressure steady, bladder control, and sleeping well. Researchers are studying new treatments to help with symptoms. MSA affects about 2-5 in 100,000 people.
Andrea Enguita
11 Apr 2025
20 mins read
Andrea Enguita
23 Jun 2025
15 mins read
myTomorrows Team
11 Feb 2025
11 mins read
Explore neurodegenerative disorder community support for those living with ALS, Parkinson’s Disease, and MSA.
The ALS Association provides support for people living with ALS, as well as funding for ALS research and advocacy for better policies for those impacted by the disease.
The Parkinson's Foundation is a US organization that funds research and provides educational resources to Parkinson's disease patients and caregivers.
For over 30 years, Mission MSA (formally the MSA Coalition) has been the leading resource on multiple system atrophy, helping to shape the future of MSA awareness, research, and support.
A clinical trial is a research study that tests new treatments to see if they are safe and work well. These treatments are not yet approved for regular use. Clinical trials also study new ways to diagnose or prevent diseases like ALS, Parkinson’s disease, or MSA.
Each trial has specific rules about who can join. These rules are called eligibility criteria. They may be based on your age, diagnosis, or other health conditions.
To see if a trial is right for you, you may need to answer some questions about your symptoms, medical history, or take a simple medical test.
Some trials also include healthy volunteers or people who have a family history of a disease, even if they don’t have symptoms.
We support patients and their physicians in finding and accessing clinical trials, including trials for neurodegenerative diseases. With the use of our powerful in-house platform, we can efficiently pre-screen patients for potentially relevant clinical trials worldwide. Our dedicated patient navigator team directly supports patients by walking them through the information, providing personalized guidance and step-by-step support.
We’re here to help patients and families understand their options, ask the right questions, and make informed decisions about their care.
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Speak with our supportive team in the language of your choice, no matter where you are in the world. They are on hand to guide you through every step of your treatment option journey.
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If the patient and their physicians agree that an option is right for them, we them with clinical trial sites. To make this process easier, our patient navigators guide patients every step of the way and act as a single point of contact. Learn more about how we help patients.
Patients usually don’t have to pay for most of the costs relating to clinical trial participation. Drug manufacturers typically make the treatment in a clinical trial available free of charge. However, there may be other costs associated with taking part in a clinical trial, such as additional medical appointments or travel expenses. and your insurance provider before enrolling in a clinical trial.
Some clinical trials focus on advanced stages of neurodegenerative disorders, while others may be designed for earlier stages. Our patient navigators can help present you with information about trials relevant for your current disease stage and condition which you may be potentially eligible for, whether you have early or advanced Parkinson’s, ALS, MSA, or another neurodegenerative disorder.
It is important to remain on your current treatment, and to follow your physician’s advice. However, you don’t have to wait to be referred to a clinical trial. Many people with a life-threatening disease actively look for clinical trials prior and during the treatment, to find more options to educate themselves about what is available.
Family members and caregivers play a crucial role in supporting patients with neurodegenerative disorders during clinical trials. They may support with travel to appointments, help with daily tasks that become difficult, track symptoms and side effects, or provide important emotional support.
Our patient navigators support caregivers as well as patients, offering information about what will be involved in the clinical trial and help to set expectations about what potential support might be required.
Our patient navigators are an essential point of contact for patients, helping them to find out about relevant neurodegenerative disease clinical trials.
They are a familiar contact for patients throughout their journey. While they cannot give medical advice, patient navigators are trained to explain complex medical terms to patients. They offer reliable, multilingual support covering all global time zones. Learn more about our services for patients.
Yes, you can quit a clinical trial at any time if you decide you no longer want to participate. However, it’s important to discuss your concerns with the clinical trial team before making this decision, as they might be able to address your concerns.
We treat all patient data with high confidentially and none is processed without your explicit consent. Our strict data policy restricts the access of data to only qualified employees with direct operational responsibility for helping patients. Our platform ensures data security through encryption and access control to prevent unauthorized access and data breaches.
Both our platform and all our digital solutions are ISO 27001-certified. We have regular audits and assessments to monitor our compliance with GDPR standards and continually improve our data protection practices. Where applicable due to the nature and location of the services we provide, we are compliant with HIPAA requirements.
Any user of our services may exercise their rights under GDPR at any point by contacting us at dataprotection@mytomorrows.com as indicated in our Privacy Statement.
No, myTomorrows cannot provide any medical advice or medical services for patients. We recommend that you speak with your treating physician regarding any concerns or medical guidance when considering or selecting a clinical trial or expanded access program option. Treating physicians remain in charge of their patient’s treatment plan which includes providing answers to specific medical questions. Our team can only support in providing information about clinical trials and expanded access programs that may be relevant and available to patients, including for those living with Parkinson’s, ALS, MSA, and other neurodegenerative diseases.
Our services for patients and physicians worldwide are free of charge. This includes providing information about clinical trials, expanded access programs and making referrals.
