There may be a clinical trial available for you or your loved one. CureLGMD2i Foundation and myTomorrows are working together to support people living with limb girdle muscular dystrophy, in their journey to find clinical trial options and support them with next steps.
.
CureLGMD2i Foundation and myTomorrows share a commitment to support people with limb girdle muscular dystrophy, and their families. We know identifying and pursuing a clinical trial can be challenging, and together we provide support on this journey. This support is always free of charge for both people with limb girdle muscular dystrophy and healthcare professionals supporting them.
Here’s how it works:
1. Schedule your call with a myTomorrows’ Patient Navigator
2. Receive your personalized overview of clinical trial options
3. Discuss your options with your doctor
When an option seems to fit you, we help you get in touch with a clinical trial site.
Book a free call with myTomorrows to explore your trial options and get help with your next steps.
myTomorrows is a platform that supports people with unmet medical needs, and their physicians, to explore and potentially access clinical trials and expanded access programs. Book a call with our Patient Navigators who speak different languages and can help you understand your options. Your Navigator guides you through each step, from searching for options to answering questions and helping you access potential options you may want to pursue.
The CureLGMD2i Foundation was created by the Brazzo Family when their daughter, Samantha, was diagnosed with Limb Girdle Muscular Dystrophy Type 2I/R9 at the age of two. At that time, there were no FDA approved therapies for LGMD2I/R9. They created this 501(c)3 Nonprofit Organization (formerly known as The Samantha J. Brazzo Foundation) with a mission to spread awareness, provide advocacy for the patient community, and to raise funds to support research for LGMD2I/R9. Book a call with myTomorrows to explore your trial options and get help with your next steps.
“Our vision is a future where individuals affected by this rare disease can receive early treatment and live unburdened by its challenges. We look forward to continuing to further this mission with the help of myTomorrows, providing support for our community of patients and their families and enhancing their ability to access and utilize pre-approval treatment options.”
Kelly Brazzo, CEO and co-founder of CureLGMD2i Foundation
“We are thrilled to be partnering with CureLGMD2i to help raise awareness of clinical trials among patients with LGMD2I/R9, their loved ones, and the physicians who treat them. This collaboration advances our commitment to empowering patients and healthcare professionals with confidence and knowledge throughout their treatment journeys.”
Dr. Michel van Harten, CEO of myTomorrows.
A clinical trial or study is research that looks at whether an investigational medicine is safe to use and whether it works like it is expected to work. They are not approved for their safety or efficacy but are in investigational development. The information that comes out of a clinical trial might change how patients are treated for the targeted disease. The information may also determine if the investigational medicine works better or has fewer side effects than the treatments that are currently being used.
When considering clinical trial options, you may have lots of questions that need to be answered, from “how does a clinical trial work?” to “what are clinical trial eligibility criteria?”.
Read the myTomorrows blog ‘10 questions to ask before participating in a clinical trial’ and discover some common questions to ask before joining a clinical trial.
