In partnership with the ALS Association

Explore ALS clinical trial options with free, personal support

If you are wondering whether a clinical trial might be right for you or a loved one, you are not alone. myTomorrows can help you understand your ALS clinical trial options, with no obligation to enroll or participate.

Explore trial options

How myTomorrows and the ALS Association support you

The ALS Association and myTomorrows are working together to help people living with ALS and their caregivers. myTomorrows offers free, personal support to explore clinical trial options.

myTomorrows’ patient navigation team can help you understand which trials might be relevant for you or a loved one, explain what is typically needed to join, and suggest questions you may want to ask your doctor or healthcare team.

A grid of nine smiling headshots of the myTomorrows patient navigation team.

Through this partnership, you can:

Explore your ALS clinical trial options
Learn what is typically needed to join a trial
Prepare for conversations with your healthcare team
Consider next steps without pressure or obligation

How it works: exploring your ALS clinical trial options with myTomorrows

myTomorrows supports patients and their caregivers worldwide in understanding and exploring possible clinical trial options. To get started, follow these three simple steps:

Step 1

Share your medical information

You provide information for us to better understand your medical situation. All information you share is kept confidential.

Step 2

We review your information

Our patient navigation team carefully reviews the medical information you provide and searches for trials that might be a good fit.

Step 3

Receive your options

We share your trial options with you. In partnership with your doctor or support systems, you decide if and how to move forward. If you are interested in an option, your navigator can support you with next steps. You stay in control every step of the way.

Our patient navigators have globally supported 1500+ patients and caregivers affected by neurodegenerative conditions, including ALS.

The service is free to use, and there is no obligation to participate or enroll after contacting us.

Patient navigators do not replace your doctor or healthcare team. They are here to help you understand relevant clinical trial information and possible next steps.

Explore trial options

Our partnership with myTomorrows reflects a shared commitment to simplifying ALS clinical trial participation, making it easier, faster, and more accessible for people living with ALS to contribute to research that could shape the future of treatment and care.

Melody Schaeffer, PhD, MPH

Senior Director, Mission Programs, ALS Association

Frequently asked questions (FAQs)

Is this relevant for me or my loved one living with ALS?

If you or your loved one has been diagnosed with ALS, there may be clinical trial options worth exploring, depending on your diagnosis , how long you have had symptoms, your treatment history, and other medical factors. A short call with a patient navigator can help you understand what may be relevant now and what may be worth discussing with your doctor. You do not need to decide anything during the call.

What is the AI-guided questionnaire?

The AI-guided questionnaire is a short, online set of questions about your diagnosis, treatment history, and current situation. Your answers help us look for clinical trial options that may be relevant to you. The AI may ask follow-up questions to help us better understand your situation.

We know ALS can affect speech. That’s why, after submitting the contact form, people with ALS can choose to complete the questionnaire instead of booking a call with a navigator. You do not need to have every medical detail ready to get started.

Our patient navigation team reviews your answers and will explain what options may be worth exploring further and what next steps could look like. We will not contact any clinical trial team without your permission.

What happens if I book a patient navigator call?

You will speak with a navigator who will ask a few questions about your diagnosis, treatment history, and current situation. We use this medical information to look for clinical trial options that may be relevant for your situation. You do not need to have every medical detail ready to get started. After the call, we will explain what options may be worth exploring further and what next steps could look like. We will not contact any clinical trial team without your permission.

How quickly can I speak with a patient navigator?

In many cases, you can book a call soon after submitting the form. Available times may vary depending on your language and location, but you will be able to choose the earliest available slot that works for you. We know that some situations feel urgent and aim to make it easy to speak with someone without a long wait.

Is there any cost to speak with a patient navigator?

No, there is no cost to speak with a myTomorrows patient navigator. Our services are always free of charge for patients, caregivers and physicians. The call is for information and guidance, so you can better understand what clinical trial options may be relevant and what next steps could look like. After the call, you can decide what feels right for you or your loved one. There is no pressure to move forward.

What is a patient navigator?

A patient navigator is your main point of contact at myTomorrows while you are exploring your clinical trial options. Your assigned navigator helps you understand your options and is with you throughout the process.
Patient navigators can't give medical advice, but they are trained to explain complex medical information in a clear, simple way. We offer dependable, multilingual support, covering American and European time zones.

Is this a commitment to join a clinical trial?

No, exploring your trial options is not a commitment to join a clinical trial. Many people living with ALS and their caregivers reach out to myTomorrows simply to understand what ALS clinical trial options may exist and what taking part could involve. After contacting us, you can decide what, if anything, you want to do next. You stay in control of every step of the way.

What if I am not eligible for a clinical trial?

That can happen, and it is common. ALS clinical trials often have specific requirements based on your diagnosis, amount of time since your symptoms began, test results, general health, and other medical factors. If you are not eligible for a clinical trial right now, your patient navigator can help you understand why and what may be worth watching for in the future. The clinical trial team always confirms final eligibility.

What if clinical trial options are not available near me?

Clinical trial availability can vary by location. If a relevant trial is not being offered near you, your patient navigator can help you understand whether other options might be worth exploring and what that could involve. Availability, travel requirements, and next steps depend on the specific clinical trial.

Will I need to travel for an ALS clinical trial?

Sometimes, yes. ALS clinical trials often take place at specialist clinics or hospitals, and joining a clinical trial may require in-person visits for tests or treatment. How much travel is needed depends on the specific clinical trial and it’s location. If you are interested in a specific option, the clinical trial team can confirm the visit schedule and any travel support that may be available.

Will my information be kept private?

Yes. We handle the information you share securely and only use it only to assess whether clinical trial options may be relevant for your situation. We will not share your information with any clinical trial team or hospital unless you clearly ask us to. You can choose what you want to share and decide what happens next.

More on clinical trials

What is a clinical trial?

A clinical trial is a research study that tests a new treatment or approach to see how safe it is and how well it works to treat a medical condition. Clinical trials follow strict rules and are reviewed by independent ethics committees to help protect participants. What’s involved can vary by trial, including clinic visits, tests, and how the treatment is given. If you’re exploring options for SMA, a navigator can help you understand what clinical trial options may be relevant and what joining a trial could involve. Joining a clinical trial is always voluntary.

Why do families consider clinical trials for SMA?

Families consider SMA clinical trials for different reasons. Some want to learn about new treatment approaches — especially if they are wondering what other options may be available alongside their child's current care, or what comes next. Others value the regular check-ups and specialist follow-up that can come with joining a trial, or want to support research that may help other SMA families in the future. A patient navigator can help you understand what options may be relevant and what joining a trial could involve, so you can discuss it with your child's care team.

Are SMA clinical trials safe for children?

SMA clinical trials follow strict safety rules, but there can still be risks and side effects. Before a child can join a trial, the clinical trial team reviews medical information to check whether the trial is appropriate. During the clinical trial, children are monitored closely through regular visits and tests. Clinical trials are also reviewed by independent ethics committees to help protect participants. If you’re exploring options, a navigator can explain what safety monitoring often looks like and what questions to ask a clinical trial team. Joining a clinical trial is always your choice, and you can stop at any time.

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Not ready to contact us yet?

These resources may help you learn more about your situation, patient navigation, and questions that can matter when exploring clinical trial options.

Doctors discussing a clinical trial with patients

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