Virtual panel discussion

Unlocking LGMD2i clinical trials

This event offered patients, families, and caregivers with a comprehensive understanding of Limb-Girdle Muscular Dystrophy 2i (LGMD2i) clinical trials.

 

Featuring valuable insights from patient advocates and medical professionals, the session provided guidance on how to find and participate in LGMD2i trials.

 

If you missed it, you can now request access to the recording!

 

Access the recording

Young boy with Duchenne muscular dystrophy

Why attend?

Date: October 3, 2024

What you’ll learn:

  • Gain a clear understanding of Clinical Trials and their crucial role in the development of new treatments.

  • Receive practical guidance on how to find and access clinical trials, including how to make informed decisions together with your healthcare provider.

  • Learn key information on active LGMD2i clinical trials, including eligibility criteria and enrollment steps.

Access the recording

CEO, CureLGMD2i
Kelly Brazzo

LGMD2i Patient Advocate
Melissa Grove

Founder, Speak Foundation
Kat Bryant Knudson

Patient Advocacy Liaison
Terri Ellsworth

CCO, myTomorrows
Dennis Akkaya

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The CureLGMD2i Foundation was created by the Brazzo Family when their daughter, Samantha, was diagnosed with LGMD2i/R9 at the age of two. The foundation's mission is to spread awareness, provide advocacy for the patient community, and to raise funds to support research for LGMD2I/R9.

501(c)3 Nonprofit Organization

Founded in 2008, The Speak Foundation was the first patient led nonprofit organization located in the USA which focuses on being a voice for all individuals living with LGMD and other rare forms of muscular dystrophy.

501(c)3 Nonprofit Organization

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