This event provides patients, families, and caregivers with a comprehensive understanding of Limb-Girdle Muscular Dystrophy 2i (LGMD2i) clinical trials.
Featuring insights from patient advocates and medical professionals, this session will provide guidance on how to find and participate in LGMD2i trials.
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The CureLGMD2i Foundation was created by the Brazzo Family when their daughter, Samantha, was diagnosed with LGMD2i/R9 at the age of two. The foundation's mission is to spread awareness, provide advocacy for the patient community, and to raise funds to support research for LGMD2I/R9.
501(c)3 Nonprofit Organization
Founded in 2008, The Speak Foundation was the first patient led nonprofit organization located in the USA which focuses on being a voice for all individuals living with LGMD and other rare forms of muscular dystrophy.
